
Thursday, June 18, 2009
6/13/09 We are a pair.

Thursday, April 30, 2009
4/30/09 From Myra: Chemo be gone!
When I arrived yesterday Joy said, "Your normal suite?" We laughed because as you know throughout my ENTIRE treatment I have always had one of the private rooms. Just worked out like that! I felt like royalty. And when the volunteers came around with offers of treats and drinks, they knew they could always count on Myra to say, yes please. LOL Please one day they brought me pizza!
During my exam with Dr. H I told him I have lots of questions about what happens next. He said I know you do, but hold off until the next visit (May 27th), and BRING ROBIN I know she will have a notebook full too! :)
I got so many hugs and kisses. It was bittersweet. They went on to tell me how they looked forward to my positive attitude each visit and waited to see what I’d wear!! I told them not to make me cry as we laughed out loud together.
Robin I am so grateful for all the loving support I received through this entire ordeal from so many and especially you. Through this journey I met those who did not have what I had, and that was so sad.
I have always enjoyed life, always tried to treat everyone right and to show myself friendly. I pray today I embrace that person even the more.
Love,
Myra
Wednesday, April 29, 2009
4/29/09 And there IS light at the end of the tunnel
Friday, April 3, 2009
4/03/09 She's B-A-C-K!


Tuesday, March 17, 2009
3/17/09 From Lonnie Dervil Trotman
Tuesday, March 10, 2009
3/10/09 Article in NYT: Time Is a Trickster When Cancer Runs the Clock

By DANA JENNINGS
Published: March 10, 2009
Once cancer has invaded and set the new pace for your life, you’d be hard pressed to try and change it.
Click here to read the full article.
Thursday, March 5, 2009
3/05/09 P-O-K-E-N-O! Submission from Linda Dozier
I thought maybe these clips would bring Myra a little joy.

Sherry Jackson, OH Myra, Me, Robin Cannon, Deb Mewborn, Aquita Blount, Connie Miller

Note that Myra was called “NEW GIRL” that year. It was her first slumber with us. Of course she made it known her second year she could no longer be called “NEW GIRL”…..LOL
Linda
Wednesday, March 4, 2009
Four down....Goodbye Adriamycin-Cytoxan, Hello Taxol
Myra told the doctor that it took longer from her to recover from the last treatment and he said 'Just wait until this week!'. He reminded us about how compounding the cumulative effect of this is. So, Myra just needs to get through the next two weeks' impact of the AC and then on to Taxol!!
Some good news! Myra no longer has to administer the nulasta shot (which if you recall is part of the awful bone pain caused by the bone marrow production!) but now she will take 5 decadron tablets the night before and morning of each treatment. The nurse suggested she take them with an ambien or tylenol pm the night before to help her sleep since it can make you a little edgy/jittery.
I also heard from a dear friend that they give you Benadryl with the Taxol and so you are sleepy and not fit to drive afterwards. The Taxol will take about 3+ hours to administer after the 45 minutes pre-work so the chemo sessions themselves will be considerably longer.
Taxol Side Effects: decrease of white blood cells, red blood cells and platelets, allergic-like reaction, numbness and/or tingling to fingers and toes, muscle aches, bone pain, mouth sores, hair loss, diarrhea.
Sounds great eh?
We asked Dr. H about the NYT article (cited in an earlier post 2/12/09) about the clinical trial using the drug Zometa to reduce cancer recurrence and metastases. He was so proud when he told us that it is in clinical trial and is already a part of Myra's future regimen and that they were one of the very first places to trial it. Boy did that give Myra a sense of confidence.
Here is Myra with her buddy.
Finally, Myra and I were looking at catalogs together contemplating wigs and hair coverings. Dr. H said that by the time she had picked one out, her hair would be coming back in. Patty, a nurse who had been tending to Myra said, "OH Myra! You are our poster child in regards to chemo and how well you look." That made Myra's day!
This reporter is happy to tell you that Myra still has her faith, her spirit and definitely her sense of humor.
Myra loves to read this blog in reverse chronological order to see how much progress she has made so please keep those comments, stories and photos coming.
Humbly yours,
Robin
3/04/09 Myra and the Girls!
Here are some pictures clearly taken by a 'crooked' person (check out the pictures on the wall!!!)

From L to R: Back row: Josephine Johnson, Celeste Weekes, Jennifer Jackson, Cyndi Hofer- Front row: Myra and Danille Polcer
Tuesday, March 3, 2009
3/03/09 4th Treatment Tomorrow: In Myra's words....


Sunday, March 1, 2009
3/01/09 Gina's Spin Oddesy
And click here to see the last few minutes of an emotional and rewarding day. Hats off...Friday, February 27, 2009
2/27/09 How is Myra? Directly from the horse's mouth....
I was thinking about what can I eat? (stop laughing!) What comes to mind that doesn’t make my stomach flip at the very thought of it? And ROBIN to my surprise, after naming all my favorites I said Chinese? So, I walked inside this Chinese joint and thought I might throw up, but I didn’t!
I got veggie lo mein and the fried chicken wings and prayed all way back home that I’d be able to eat it, since I DON’T EAT Chinese food. I got it home and it was sooooooooooooooooooo good! I was so happy I cried!! I am drinking ginger ale and it feels good in my tummy too. :)
Ok I am going to watch American Idol now and hopefully eat an Oreo???!!
Love you and I am holding it down!
Myra
2/27/09 From Robin Gaetani & Rob England

Love, peace & hair grease!!!! I’m out!
Robin
Tuesday, February 24, 2009
2/23/09 Tough Times Don't Last....
Wednesday, February 18, 2009
2/18/09 Three down, 5 to go! Me and My Buddy


How KICK ASS does she look in this ball cap??? Who could look so good with a perfectly round ripe bald head but Myra. Made me hungry for an apple afterwards!! :)
Thursday, February 12, 2009
2/12/09 Bald and Bodacious!
2/12/09 Happy Half Birthday Myra!
Dear Friends of Myra,
Many of you know that Myra is going through a challenging period in her life right now. After her diagnosis of breast cancer at the end of the year, came surgery followed by two of eight scheduled chemotherapy sessions completed thus far.
Her spirit continues to be resilient, and is tested daily by the side effects of her
chemo treatments. Knowing she has the love and support of all her “Peeps”
continues to help her through some tough days.
To continue our joint love-fest for Myra, we can do something special and collective to cheer her along while she wins her battle with cancer. We’d like to ask you to write down your favorite ‘Myra Moment’. The plan is to collect your personal Myra stories via email, print them out and bind them in a scrapbook for her. Since we all know how Myra LOVES her birthday, it will be nice to surprise her and present the scrapbook to her on her HALF Birthday which is Feb. 12!
Everyone has a Myra story they remember: The one that made you laugh out loud.
That embarrassing moment she couldn’t wait to tell you about. The song she couldn’t get out of her head.
There’s not much time so please send an email to Penny Gunn with your favorite Myra memory no later than Monday, Feb. 9th. Please make it easy on yourself and feel free to write your thoughts/stories down in the body of an email and send. Your input will be printed out on appropriate paper. Or if you want to design your own page, you can attach the file to your email.
Thank you for helping give Myra this great big hug wrapped up in the form of a birthday present!
Let us know if you have any questions.
Love,
Robin, Judy Perugini and Penny Gunn
Here are a few photos and Myra's response!!
OMG
I got the most precious, crafty, beautiful gift delivered to me today.
HAPPY HALF BIRTHDAY TO ME!? YOU ALL KNOW HOW
MUCH I LOVED THAT!!!! :)I can not even express how wonderful it is. I am reading them all and admiring the smart little quote stickers, it’s great. I swear I have been laughing out loud reading so many family and friends stories! I am a trip huh?? LOL
I am so floored! Tears of laughter and joy are over my face.
Thanks to you all for such a thoughtful gift and
surprise!
Love, Love, Love,
Myra

2/12/09 Interesting article in NYT this morning
Bone Drugs May Help Fight Breast Cancer
By GINA KOLATA
Published: February 12, 2009
A drug of a class commonly used to combat bone loss may reduce by a third the chance that some breast cancers will spread or recur, a large study has found.
Read full article: http://www.nytimes.com/2009/02/12/health/research/12bone.html?partner=permalink&exprod=permalink
We will ask Dr. Hollister about this on Wednesday.
Tuesday, February 10, 2009
2/10/09 Hair today, gone tomorrow.

"Well it is DEFINITELY a GRAY DRESS moment but it is time to take the chemo bull by the horns and ride this baby!!! I have something funky going on with taste buds now--can’t seem to taste flavor, but you know I am still eating!! LOL. My lips are this freaky pale like pink and I have some mouth sores. Stomach does flips every now and then but nothing major THANK GOD. I have an appt with Dr. Atkiss today to do some breast work….hey its something :)
Saturday, February 7, 2009
Thursday, February 5, 2009
Wednesday, February 4, 2009
2/04/09 2nd Chemo Today
Well, Myra made it through her first 2 week chemo cycle. The first few days after were deceivingly ‘easy’. Of course, easy is an extremely relative term. Myra was tired but able to eat three square meals a day and was feeling pretty good. Then Day 6 came. And Myra got hit by the chemo bus. It knocked her out. Literally. She was too tired to eat or drink and not being hydrated properly she did her best Humpty Dumpty imitation. I will save the precise details about where she was and what she was doing when it happened for later but suffice it to say, this is something we will laugh about later. We think it scared her silly and a case of Diet Snapple and a few straws later, Myra was back to a rigorous hydration regimen.
Day 7-8 brought the bone pain we had heard about but couldn’t begin to understand. The pain was unbearable and she called Dr H to be reassured that this was from the Neulasta shot, which I affectionately refer to as neu-NAST-a. The Neulasta stimulates and essentially encourages the bones to overproduce white and red bloods to ensure Myra is strong enough for the treatments. The net effect is you feel extreme pain in your bones, mostly in your hips and spine (areas of lots of bone marrow).
Myra’s words during those tough days….”My body aches and I can't figure out how to describe it. Feel in back, hips and makes me close my eyes and pray for it to pass.”
I checked out a lot of the cancer patient blogs for insight into how it would feel and tips for coping. I thought some of their words described it best.
“The doctor told us it'd feel like you'd been kicked by a mule.”
“It’s hard to appreciate how many bones you have in your body until they all start hurting at once. It’s over now, but yesterday my bones screamed out like a wicked choir in a clench-your-teeth-and-wait-for-it-to-pass kind of pain. I’ve heard it said that if ever you wanted to forget your troubles, you should just wear shoes that are too small. I can say that by yesterday evening my mind was completely clear, save for the total focus on my over-producing skeleton.
Myra discovered for herself that heating pads, a hot bath and Tylenol regularly are the best you can do until it passes. We also hear that the pain lessens as time goes on; although other patients don’t know if it is because they got used to it or that over time your body doesn’t need to produce so much.
Today, Myra had a port installed.

As I write this, she is now receiving her second of 8 chemo treatments, and is doing well. Remember the effect of this nasty chemo is cumulative so the fatigue will be 2x this time. The good news is Myra knows what to expect. Also, Myra’s hair will begin falling out in clumps likely day 2 following chemo. The hair loss occurs because the follicles are weakened by the chemo. I am told that you just can not be mentally prepared enough for this and it is unsettling when it happens. All in all, our brave Myra continues to a warrior.
Think warm thoughts for Myra and thanks for everyone’s continued support and prayers. I’ll keep you posted.
Robin
Friday, January 23, 2009
1/23/09 One down, seven to go.
Joy was our chemo nurse and she was really wonderful explaining everything in detail for us. Here is a picture of her (notice Myra’s new do!)

She began by putting an IV in Myra’s arm. Myra has had a long standing history of troublesome veins and yesterday was no different. The nurses finally got it in but it caused Myra a lot of anxiety and everyone, nurses, Myra and Dr H included, agreed that installing a port would make the treatments much less stressful for Myra since the only part she was concerned about was getting the IV in each time. Once the IV was in, it was relatively straightforward.
Many of you have asked me what it is like. You basically sit in an recliner and let the IV drip! The first 4 cycles (8 weeks) are of the Adriamycin and Cytoxan and are the tougher drugs. For the second 4 cycles, she will receive the Taxol. She starts by taking an anti-nausea pill (Emend) 30 minutes before treatment and then they flush a bag of saline through her system. First she got a small syringe of the adriamycin. It is red (like a merlot or zinfandel) and Myra was warned that it would come out of her the same color (and it did!). She is simultaneously given a steroid (decadron) to help with nausea. After another bag of saline, and then Myra received the cytoxan.
She will have to get (or give herself) a shot of nulasta 24 hours after each treatment to stimulate white blood cells. She is so brave.
Volunteers come in and bring snacks and drinks (Myra had a protein bar and hot chocolate for those of you wondering!) and the entire staff is incredible…smart, funny, warm.
Her hair should fall out in the next ten days. The doctor and nurses told us that the 2nd and 3rd days after chemo tend to be the roughest. And that the nausea medications are pretty darn good (emend, compazine and decadron) now but the fatigue is the biggest factor. She is recovering at her Mom’s with lots of TLC and today continues to feel reasonably well. She is eating three ‘square meals’ a day and has bouts of nausea but if she sits very still she says it passes. She intends to work if she can but is taking this treatment one day at a time to see how her body reacts and how she feels.
The morning of her next cycle (February 4th) she will have the port installed across the street at the hospital and then come in for her treatment.
So far, so good. Keep the prayers coming
Friday, January 16, 2009
1/16/09 Getting in front of the hair loss...
Tuesday, January 13, 2009
1/13/09 Treatment time!
Yesterday, Myra and I went for a post-surgery appointment with the oncologist, Dr. Hollister. With surgery behind her, we are faced with the reality that Myra’s battle with cancer really begins now. The truth, we know now, is that surgery was the pre-work and the road ahead will be hard, long and uphill. Two of her 17 lymph nodes came back positive, which means her cancer can and has traveled. Myra will begin aggressive treatment consisting of hormone therapy and chemotherapy to eradicate the cancer cells and give her the best chance to prevent the cancer from reoccurring. The chemotherapy regimen is a combination or ‘cocktail’ of drugs used to destroy the cancer cells. The Hormone therapy is used to block the effect or to lower the levels of estrogen, a hormone that promotes the growth of breast cancer cells.
Because she is in such good health and is physically strong, the doctor feels she can handle the strongest and most aggressive chemotherapy and so Myra will be receiving “Dose Dense” chemotherapy which is a chemo regimen administered on a condensed schedule. Her particular regimen is called ACT which stands for A-Adriamycin, C-Cytoxan, T-Taxol. Here is a link to more about the ACT Chemo Regimen for those of you who want to understand this a little more.
Every two weeks, for the next four months, Myra will get chemo at the The Bendheim Cancer Center at Greenwich Hospital which resides in the same building as Dr. Ward, the surgeon who removed her tumor. We are fortunate to live so close to an outstanding facility that will treat her disease ruthlessly while treating Myra with the utmost humanity, respect and care.
These treatments will become increasingly difficult over time and the effect, particularly the fatigue, is cumulative. She will get medication for the nausea, but our electric Myra may lose her spark temporarily in the process, oh yes and also her hair!. She is planning to cut it short this weekend in preparation as Dr. H said her hair will come out very quickly following first chemo.
Myra asked that I take a picture of her with “Uncle Dickie” yesterday. Please keep this image fresh in your mind.

As I mentioned, Myra’s first chemo treatment starts next Wednesday. Everyone reacts differently and we will see how she responds to the treatment and will have a better idea of what to expect.
Thank you all for your offers of support – I will come back to you in the next weeks to let you know exactly what she needs. Please forward this message to those I might have missed or send me their names to add to my list.
Love,
Robin
Tuesday, December 30, 2008
12/30/09 Myra resting comfortably

With love,
One relieved Robin
12/30/09 Surgery is complete
I have just spoken to Dr. Ward, the breast surgeon (see attached photo) who has successfully removed the tumor. There was also a small amount of tumor removed (only visible by microscope) in the sentinel node which merely tells us that the cancer is capable of traveling and will require chemotherapy, which we already knew. The occurrence of the cancer in the sentinel node does not change the staging (still stage 2) nor the prognosis. Dr. Ward reiterated that it was very straight forward, that she is extremely optimistic about her long term prognosis and that Myra is rock stable and in excellent general health and should recover nicely.
Myra will be in surgery for another hour now with Dr. Atkiss who is putting in a tissue extender to prepare for the eventual implant and breast augmentation. We expect her to be out of surgery at about 11:30, in recovery for one hour and hope to see her by 1pm or so this afternoon. I will send another update once we get our hands on her. Thanks for everyone’s prayers, support and good wishes. Our girl is doing great!
Thursday, December 4, 2008
12/04/08 Diagnosis and Prognosis
Myra and I had a sensational visit with Dr. Dickerson Hollister (aka Uncle Dick!). He is the chief oncologist at Greenwich hospital and works extremely closely in the same building (cancer center) as Dr. Ward, the breast surgeon. We had heard through the grapevine that he was the best of the best but that his bedside manner left something to be desired.
We knew that he was a very busy man with time scheduled in 15 minute increments and so we expected a brisk, fast, in-and-out session without a lot of commentary and care. Boy were we mistaken. He was just incredible and spent nearly an hour with us, examining Myra, answering our questions and recommending a course of treatment. He fell in love with Myra. She had him cracking up and he teased her and also told her to ‘chill out’. He was eager to get started with the plan we developed together and personally called Dr. Ward, who referred us, to bring her up to speed on the case and treatment plan. Best of all, he even hugged Myra goodbye!
First, the medical facts.
Myra’s diagnosis and prognosis are terrific. Her PET scan is clear-- meaning the cancer has not spread outside the breast. There is no evidence of it in lymph nodes or other areas outside her right breast though we can’t know that for sure until the tissue is removed and biopsied. There does, however, appear to be a second site within same breast so we are opting for a mastectomy right away – we are trying to schedule for end of the month. Her hormonal indicators thus far are very positive which means she will respond well to some drugs as part of the treatment.
Myra’s treatment will consist of the breast surgery to remove the right breast (mastectomy), followed by chemotherapy (approx 16 weeks). She will then do hormonal therapy (which is administered by drugs for approx 5-10 years). Dr. Hollister felt it was very ‘garden variety’ and imminently curable and treatable. Though it is a large tumor, it is a slow growing one. All in all, it was a VERY good prognosis and we left very comfortable with diagnosis and treatment and oddly somewhat exhilarated by the news as we had prepared for the worst case scenario.
Thanks for your support and for your prayers! They are working. We will continue to keep you posted.
Lots of love,
Robin and Myra


















